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National Reyes Syndrome Foundation, Inc.

Talk to your Teen... Tell them Why... Tell them about Reye's.

 

Learn how important it is to talk about Reye's with your Teens.


Schools & Health Departments:
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September is Reye's Syndrome Awareness Month! Be Wise about Reye's!
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Fact: No one is immune. Reye's affects all ages, both genders, and every race.

Fact: Research figures show that 90 to 95 percent of Reye's Syndrome patients in the United States have taken aspirin during a preceding viral illness.

Remember...
Reye's Syndrome usually appears after a flu-like infection, upper respiratory infection, chicken pox, or other viral illness.

Fact: A person diagnosed with Reye's Syndrome must be hospitalized and treatment begun immediately.

Fact: Aspirin and salicylate containing medications do not have to be ingested to bring on Reye's. These medications only increase a person's chance of developing the disease.

Recycle and Help the NRSF spread Reye's Awareness
Recycle, and support the NRSF at the same time! Find out more...

National Reye's Syndrome Foundation; Talking with your Teens and Young Adults....

It is a serious conversation. Teens and Young Adults are self medicating. You can't watch them all the time; they have a great big world out there to explore and experience.

They have friends who will offer them an aspirin, or pamprin, or a tube of muscle cream. They will see products in Mom & Dad's medicine cabinet, or Grandma's and Grandpa's cabinet and think the product is safe and therefore okay for them to use. Any product containing Aspirin or Salicylates are not okay for teens and young people to use.

As our children grew up, we as parents did not give them aspirin products. Doctors told us not to, and often explained why. As our children get older, we need to tell them what the risks are in using aspirin containing products.

Reye's Syndrome strikes swiftly. It is not a disease that only affects very young children; it can strike any child, teen, young adult, or adult without warning. We've documented cases from several months in age to 80 years of age.

The cause and cure remain unknown, and research has established a link between Reye's Syndrome and aspirin along with other medications containing Salicylates. (Lists are available here: Prescription, Over The Counter Drugs, Topical Products.)

With teens, especially, the symptoms of Reye's Syndrome are often misinterpreted as a Drug Overdose, or a Drug Reaction. If you suspect Reye's with your child, don't hesitate to insist on several tests being run. You can print the Emergency Room information sheet by clicking here. Take this sheet with you to the emergency room and show it to the doctors.

Joshua's Story;

My son, Joshua, a sophomore at Hampshire College in Amherst MA died from the complications of Reye's Syndrome in 1994... he was 19 years old.

At the time his illness began, he was a healthy six-foot college sophomore, happy with his life and the college of his dreams. He was growing into a wonderful young man and excelled in his course studies at the college he loved.

He called me one snowy day to say he was not feeling well. He asked what he should do. I advised him to go to Student Health and call me right after his appointment. The doctor said he had the flu. Based on the symptoms he described, I told him he should come home and we would see our family doctor. It seemed to me he had Mono. He came home and saw our family doctor who confirmed that he did indeed have Mono.

The treatment was simple...get plenty of rest and drink lots of liquids. The problem was that as the days progressed, he continued to get sicker. We went back to see the doctor every day for several days. Then he was admitted to the hospital, discharged and admitted again. Still he was no better.

He was admitted once again and this time he was critical. Our doctor either thought there was nothing to worry about or he didn't know what he was dealing with. Josh had test after test and still there were no answers.

Finally, Joshua was transferred to another hospital... the last time Joshua spoke was in the ambulance. When we arrived at the hospital we were met by a team of doctors and while taking him to intensive care they requested a signed consent form for a liver transplant. Every possible test was done, and finally the diagnosis of Reye's Syndrome was made.

Doctors put Joshua into a drug induced coma, and on life support. He continued to get worse and on March 4th, he suffered brain death. On March 5th we disconnected life support and he stopped breathing immediately. His death occurred 2 weeks after he was diagnosed with the flu and one week after being admitted to the medical center.

Joshua's Mom states;

"I strongly believe education is the best prevention. I know I was aware of not giving aspirin to children with viral infection, but I didn't consider the over the counter medications we all take may contain aspirin.

"Since Joshua's death, the hospital has instituted a protocol for Reye's Syndrome because they did not know what they were dealing with in Joshua's illness.

"There were a combination of issues that played a role in Joshua's death from Reye's Syndrome. Our trusted doctor did not take Joshua's illness seriously and the other doctors who treated Joshua ran tests but didn't know what they were dealing with. Our primary care physician was fired for his negligence. When Joshua was admitted to the hospital for the last time our physician went to a medical convention out of state. He called me when he returned to ask about my son. It was too late, Joshua had died.

"It is my strongest belief that parents, doctors and hospitals need to be educated about Reye's Syndrome. I am finally able to write about this 13 years after his death and would like to offer my assistance in helping to accomplish this important goal."

Let Joshua's Story be a learning experience, one that keeps our young people alive and safe from the threat of Reye's Syndrome.

So tell them Why.... tell them about Aspirin and about the products that contain aspirin (salicylates). Teach them to read the lables.

Tell them about Reye's.... they can pass the word to friends that offer them an aspirin, alka-seltzer, or pamprin, pepto-bismol or muscle creams that contain salicylates.

Let's keep them alive, healthy and happy. Tell them Why... Tell them about Reye's.


Here on the Foundation's website, literature, lists, posters and more can be downloaded and passed on to students, families, schools, daycare centers, health departments, physicians... to anyone who could benefit from having this information.

The Foundation's Top Objectives are:

  • AWARENESS- to aid in early detection and educate the public and medical communities about the risk involved with using aspirin and other salicylates.

  • SERVICE- to provide emotional support and guidance to families experiencing the trauma of Reye's Syndrome.

  • RESEARCH- to support investigation into the disease's cause, management, treatment and prevention, as well as study its impact on survivors.

National Reye's Syndrome Foundation, Inc.
E-mail: nrsf@reyessyndrome.org
Toll Free: 1-800-233-7393 (U.S. only)
Telephone: 1-419-924-9000
FAX: 1-419-924-9999

Tylenol and Ibuprophen do not contain salicylates and can be used as a fever reducer. When taking any medication, we recommend you check with your doctor first.
REPORT A CASE

Reye's Syndrome:
Information about Reye's SyndromeWhat Is Reye's
Information about Reye's Syndrome Bulletin
Information about Reye's SyndromeFacts
Information about Reye's SyndromeSuspecting Reye's
Information about Reye's SyndromeTreatment
Information about Reye's SyndromeAfter Reye's
The Aspirin Link:
Do Not Give Aspirin to Babies and Children
Information about Reye's Syndrome The Role of Aspirin
Information about Reye's SyndromePrescription
Information about Reye's Syndrome Non-Prescription
Information about Reye's SyndromeTopical
Resources:
Information about Reye's SyndromeChickenpox
Information about Reye's Syndrome Videos
Information about Reye's Syndrome Literature
Information about Reye's SyndromeDownload ............ ........ Newsletter;
Fall 2007
Spring 2008

 

Download Informational Letter you can send to your Pharmacy, Retail Store, or Pharmacuetical Company.

 

Download Awareness Letter / Poster you can send to Schools, Medical Personnel, Day Care Centers, Play Centers, etc.

Read the Lables;
Ingredients to Avoid during Viral Infections
Acetyl Salicylic Acid
Acetylsalicylate
Acetylsalicylic Acid
Aluminum Acetyl Salicylate
Ammonium Salicylate
Amyl Salicylate
Arthropan
Aspirin
Benzyl Salicylate
Butyloctyl Salicylate
Calcium Acetyl Salicylate
Choline Salicylate
Ethyl Salicylate
Lithium Salicylate
Methyl Salicylate
Methylene Disalicylic Acid
Octisalate
Octyl Salicylate
Phenyl Salicylate
Procaine Salicylate
Sal Ethyl Carbonate
Salicylamide
Salicylanilide
Salicylsalicylic Acid
Santalyl Salicylate
Sodium Salicylate
Stoncylate
Strontium Salicylate
Sulfosalicylic Acid
Tridecyl Salicylate
Trolamine Salicylate
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