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In The News....
Novel H1N1 Reye's Syndrome Brochure Now Available
The Foundation has produced a new brochure in conjunction with the CDC that addresses Novel H1N1 and Reye's Syndrome. This new brochure is available for download by clicking here
The foundation has also released a new "Because You Need to Know brochure, and that can be downloaded by clicking here
35 Year Commemoration
August of 2009, the National Reye's Syndrome Foundation will commemorate 35 years of Awareness, Research, and Service to parents, caregivers, medical professionals, and especially to Children.
There were many who served... many who made a difference... many who lost children then turned around and saved other children.
The selfless giving, the grass roots hands-across-the Country Awareness Campaigns, from Moms and Dads, Grandparents, Senators, Celebrities, and Presidents... there was a coming-together... an unrivaled dedication and a commitment that moved a nation and saved children.
We compiled this awe-inspiring History into an attractive book, a book that takes us back through the journey, year by year; a journey that portrays the courage, fortitude, and accomplishments of a group of individuals whose commitments were far bigger than themselves, whose voices rang out together as one voice, a group of ordinary people who fought and triumphed so that others would be safe...
The Children we lost are Honored...The Stories are there.... Pictures worth a thousand words.... The Acknowledgments are there... As is our gratitude for the opportunity to have experienced having been a part of something that truly made a difference in so many lives....
The NRSF's 35 year Commemoration will be available in August 2009, and if you are interested in having a copy, click here...
Reye's Syndrome Awareness Month
September 2009 is Reye's Syndrome Awareness Month. Our Ribbon color is Pantone Process Blue. Materials for Reye's Syndrome Awareness Month can be download here.
The NRSF Teams up with Ebay Giving Works!
The NRSF is now an accepted charity with Ebay Giving Works, so sellers can now sell products on Ebay and designate a portion of the sale to go to the Foundation. Buyers can locate items for sale on behalf of the NRSF by checking here. We are really excited about this opportunity to work with Ebay Giving Works. So, if you sell items on Ebay, or have friends who sell items on Ebay, consider choosing the National Reye's Syndrome Foundation as your Charity of choice!
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The Foundation's Programs
Awareness - to aid in early detection and to educate the public and medical communities about the risk factor involved with the use of aspirin. To conduct awareness programs, the NRSF has brochures, bulletins, television and radio public service announcements, documentary and video/DVD presentations, and a speakers bureau available to groups and organizations free of charge.
Service - to give the families experiencing the personal trauma of Reye's Syndrome emotional support and guidance.
Research - to support investigation into the cause, management, treatment, and prevention of the disease, as well as study the impact the disease has had on survivors.
Major Accomplishments of the NRSF
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Encouraged and supported mandatory warning labels on all over-the-counter medicines containing aspirin. |
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Produced and distributed an award-winning Reye's Syndrome documentary, entitled "Reye's Syndrome: A Real and Present Danger." This documentary is still available. |
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Developed and produced television and radio public service announcements featuring National Spokesperson, Dick Van Dyke. |
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Provides a toll-free 800 Reye's Syndrome hot line: 1-800-233-7393. |
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Conducts an annual mass mailing to almost 16,000 school systems across the country in a massive education awareness campaign. |
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Observes National Reye's Syndrome Month in September and National Reye's Syndrome Week the third full week in September. |
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Participates in various television programs and taped radio interviews across the country. |
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Establishes affiliates located throughout the country. |
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Produced and distributed a medical DVD, entitled "Reye Syndrome And It's Mimickers"
-- Only available for medical professionals. |
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Consistently updated Website; Available in Multiple Languages; Language Expansion Continuous. |
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Research
The Foundation established a Scientific Advisory Board (SAB) comprised of eight medical scientists from various parts of the United States and Canada, many of whom have been active in Reye's Syndrome research.
The Scientific Advisory Board is chaired by Dr. Thomas H. Glick, Associate Professor of Neurology at Harvard Medical School, and Chief of Neurology at The Cambridge Hospital, Cambridge, Massachusetts.
National Reye's Syndrome Foundation, Inc.
E-mail: nrsf@reyessyndrome.org
Toll Free: 1-800-233-7393 (U.S. only)
Telephone: 1-419-924-9000
FAX: 1-419-924-9999
The Foundation's Top Objectives are:
 ... AWARENESS - to aid in early detection and educate the public and medical communities about the risk involved with using aspirin and other salicylates.
... SERVICE - to provide emotional support and guidance to families experiencing the trauma of Reye's Syndrome.
... RESEARCH - to support investigation into the disease's cause, management, treatment and prevention, as well as study its impact on survivors.
If this site has proved helpful to you, a donation from you would assist us in keeping this site up-to-date. To make a tax deductible donation to the National Reye's Syndrome Foundation, click here.
To become a member of the National Reye's Syndrome Foundation, click here.
Know that your donations and memberships allow us to continue spreading Awareness about Reye's Syndrome to new mom's, new medical professionals, caregivers, schools, daycare centers, churches, and immigrants, and to a global population who can now access this website. You make a difference, a life and death difference. -- Thank You.
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