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National Reye's Syndrome Foundation
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Reye's Syndrome, a deadly disease, strikes swiftly and can attack any child or adult without warning. All body organs are affected, with the liver and brain suffering most seriously.
While the cause and cure remain unknown, research has established a link between Reye's Syndrome and the use of aspirin and other salicylate containing medications.
In 1974, the National Reye's Syndrome Foundation was incorporated, becoming the first citizen group to generate a concerted, organized lay movement to eradicate Reye's Syndrome.
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What Is Reye's Syndrome?
Reye's Syndrome is a disease which affects all organs of the body, but most lethally the liver and the brain. Reye's Syndrome is a two-phase illness because it is almost always associated with a previous viral infection, such as influenza, cold, or chicken pox. Scientists do know that Reye's Syndrome is not contagious and the cause is unknown. Reye's Syndrome is often misdiagnosed as encephalitis, meningitis, diabetes, drug overdose, poisoning, Sudden Infant Death Syndrome, or psychiatric illness.
Reye's Syndrome tends to appear with greatest frequency during January, February, and March when influenza is most common. Cases are reported in every month of the year. An epidemic of flu or chicken pox is commonly followed by an increase in the number of cases of Reye's Syndrome.
When Reye's Syndrome develops, it typically occurs when a person is beginning to recover from a viral illness. Abnormal accumulations of fat begin to develop in the liver and other organs of the body, along with a severe increase of pressure in the brain. Unless diagnosed and treated successfully, death is common, often within a few days. A person's life depends upon early diagnosis. Statistics indicate an excellent chance of recovery when Reye's Syndrome is diagnosed and treated in its earliest stages. The later the diagnosis and treatment, the more severely reduced are chances for successful recovery and survival.
Stages of Reye's Syndrome:
- Stage I:
Persistent or continuous vomiting
Signs of brain dysfunction:
Listlessness
Loss of pep and energy
Drowsiness
- Stage II:
Personality changes:
Irritability
Aggressive behavior
Disorientation:
Confusion
Irrational behavior
Combative
Delirium, convulsions, coma
Reye's Syndrome should be suspected in a person if this pattern or symptoms appear during or, most commonly, after a viral illness. Not all of the symptoms have to occur, nor do they have to be displayed in this order. Fever is not usually present. Many diseases have symptoms in common. Physicians and medical staff in emergency rooms who have not had experience in treating Reye's Syndrome may misdiagnose the disease. (ER Info) The symptoms of Reye's Syndrome in infants do not follow a typical pattern. For example, vomiting may be replaced with diarrhea, and they may display irregular breathing.
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The Foundation's Top Objectives are:
- AWARENESS - to aid in early detection and educate the public and medical communities about the risk involved with using aspirin and other salicylates.
- SERVICE - to provide emotional support and guidance to families experiencing the trauma of Reye's Syndrome.
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RESEARCH - to support investigation into the disease's cause, management, treatment and prevention, as well as study its impact on survivors.
National Reye's Syndrome Foundation, Inc.
E-mail: nrsf@reyessyndrome.org
Toll Free: 1-800-233-7393 (U.S. only)
Telephone: 1-419-924-9000
FAX: 1-419-924-9999
Disclaimer:
The contents of the National Reye's Syndrome Web Site, such as text, graphics, images, and other material contained on the National Reye's Syndrome Site ("Content") are for informational purposes only. The Content is not intended to be a substitute for professional medical advice, diagnosis, or treatment.
Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on the National Reye's Syndrome Site!
If you think you may have a medical emergency, call your doctor or 911 immediately.
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